What a crazy week!

How amazing was the weather over the bank holiday weekend? I loved the sun. I know for some the heat aggravates symptoms, but for me the warmth helps.

This weekend has been somewhat different with a storm hitting on Saturday. But it gave me an excuse to relax on Saturday which was really needed, I stayed in bed o my leaving to find food. It was great and just what I needed.

You see, my legs have been really sore and twitchy. I have had my baclofen upped from 30mg a day to 100 mg in the last month. It’s made me feel like a zombie from the walking dead but hasn’t helped my sleeping.

On Sunday I took my nephew Edward to a 4th birthday party. He loved it and so did I. I ran around and danced with him, climbed under tables and ate lots. It was such a good party. Even Spider-Man and Ariel from the little mermaid were there. He was a little bit scared of the Spider-Man, (who looked like he had let himself go a little after the movies!) I eventually managed to get a photo but only after I picked him up. He looked terrified! I showed him the picture a little later and his response was “I like Spider-Man, he is my best friend” I died laughing and asked if he wanted to go talk to him again and he said no.

I guess he likes the pictures better! Anyway, after the party my legs felt like lead weights with a really deep ache from my hips down. I was exhausted and fell asleep just after my tea. I woke up at half 9 and the last time I looked at the clock it was half 1, up again around half 3. My alarm went off at half 5. Needless to say, work should be fun today. Approach with care and only if your bringing coffee!

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